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Black and African American Connections to Parkinson's Disease (BLAAC PD) is a research study. It collects information on health, disease and genes to learn more about Parkinson's in Black and African American people. PD affects everyone differently. By joining the study, you can help researchers drive research that represents you.
BLAAC PD is happening at 10+ sites around the United States. The study is part of the Global Parkinson's Genetics Program (GP2). GP2 is a research project working to transform understanding of Parkinson's genetics. This may help scientists learn how to detect and stop Parkinson's. Learn more about GP2.
Genes are sections of DNA that are passed down from parents to their children. Some gene changes may raise the risk of diseases, including Parkinson's.
Genetic research helps scientists understand the causes of disease. Most Parkinson's genetics research has been in white people of European descent. GP2 is studying genes from people with different backgrounds. This could help drive new treatments for people.
BLAAC PD is already leading to new findings. Data from this and other GP2 studies helped find a genetic risk factor for Parkinson's in people of African descent.
Parkinson's disease (PD) is a brain disorder that affects how people move. It causes tremors, trouble with balance, and feeling stiff or slow. PD happens when brain cells that make dopamine, a chemical that coordinate movement in the body, stop working, or die. Other brain systems are involved too, and people with PD can have many other symptoms. These can include smell loss, digestive issues, trouble with thinking or decision making, depression, anxiety, and trouble sleeping.
Parkinson's impacts every race of people. Black Americans may be diagnosed with Parkinson's later and have more gaps in care. This news article shares more on care today and some studies, including BLAAC PD, working to change things.
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BLAAC PD needs people with and without PD.
Joining a research study is your choice. There is no cost to join this study. Your health insurance will not be charged.
What will I be asked to do if I join the study?
Your privacy is very important. The study has put measures in place to safeguard the information you contribute. The study team can talk more about these measures and your privacy.